Permanently Disabled
Every person who "acquires" a mobility disability eventually comes to the point where they realize that mobility problems are a permanent part of their lives. That moment happened to me a few days ago. Mind you, I've been using some sort of assistance for ten years now, and I have been on forearm crutches for four years, and I own no less than three wheelchairs, but they have always seemed temporary (I still have a pair of running shoes in my closet, too.) But lately, I have come to realize that I am permanently disabled and I need to figure out how I want to live out the rest of my life. But that understanding hasn't come to me easily.
I think maybe the thing that turned the switch in my mind was a pair of battles I have been fighting, one with the Department of Veteran's Affairs (VA) and one with the United Methodist Church. In the former case I am trying to demonstrate that the extent of my disabilities reduces my potential (previous) productivity. In the latter case I am trying to demonstrate that despite my disabilities, I still have potential to be productive. Talk about being caught between a rock and a hard place!
The VA subjected me to endless physical examinations, including a second trip to the same audiologist for the same tests she performed six weeks earlier. I complained about that last one. The UMC subjected me to endless paperwork that seemed to duplicate the process of ordinand candidacy. If you've been there, no explanation is needed, and if you haven't, none is possible, so let's just say it isn't pleasant. Sigh.
In the midst of these twin "real life" challenges, I've also been facing a spiritual crisis with sin. Not any great moral sin, or some dreaded scandal, but a slow, continuing realization that the battle against sin and the struggle for greater personal holiness doesn't really ever end. Along with that has come the not-so-startling revelation that we don't fight this battle alone, and that we truly are saved by grace. Without the intervention of the Holy Spirit, I could not, I cannot win the struggle against sin. I'm permanently committed to the struggle against sin - the struggle for greater personal holiness. And even though I am convinced that with Christ's help I can be made perfect in love in this lifetime, I am pulled between two poles: one that acuses me of my weakness "in the flesh" (thanks, Paul!) and one that proclaims the marvelous triumph of grace over human frailty (thanks, Charles!) I'm caught theologically between utra-Calvinism and primitive-Wesleyanism.
These two struggles, administrative and theological, went on despite the fact that I didn't really need the distraction. Most of February & March was spent in the midst of an "exacerbation", the term those of us with multiple sclerosis use to describe the periods when the symptoms of the disease reach a crescendo. My pain and fatigue reached a daily level I had previously only experienced on a rare really bad day. I found myself asking people for simple things like holding doors, fetching things from the next room, etc. I'm a proud person, very independant, and I despise relying on other people for simple tasks. Lately, in my need I've been humbled, again and again, and hopefully the bottom of my personal pride in this area is being reached.
My reaction? Typically for a prideful person, I tried to compensate by spending more time working at my desk, doing more, committing to more, etc., worsening my situation. Still, there is something intrinsically incarnational trying to minister to others as I need the ministrations of so many myself. "We're all in this together" and "It takes a village" don't come close to it. Somehow, in my disability, I've become a bit more Christ-like. Have you ever gone to minister to the dying, only to have them comfort you? So it seems to be with me very often, as the interchange of ministrations between myself and those I would serve get tangled with the services they render to me.In this sense my disability is a gift. To quote a line from the screenplay of Little Big Man, "I thank you for my eyes, and for the blindness in which I saw further."
In our quest for greater holiness, as we try to take on more of the personal ministry Christ while becoming more fully empowered by the Holy Spirit, I think we also can become more humbled, more receiving, more needing. And this growing need is filled by by the Holy Spirit as we are served by each other. Our needs and responses knit the community together into the mutually loving community that is the church at its finest. Or so it seems to me.
So where does this leave me? 'Cause this column is all about me. . .
I am resigned.
I am resigned not to sinfulness, but to the simple fact that I depend totally on Christ for the ability to navigate through, around, beyond sin. I can't take credit, it's God who is saving me. I fling myself at the figure on the mercy seat (thank God it isn't a seat of justice!) I am greatful that God loves me for who I am, and knows what I can yet become.
And I am resigned to my lack of mobility. I bit my lip and ordered new permanent crutches last week (titanium ones, just like Lt. Dan's leg in "Forest Gump.") With God's mercy, I'll stay mobile on crutches long enough to wear them out.
Denoument:
Just a day or so ago, I got this wonderful call from my new prospective district superintendant telling me that the bishop of the Virginia Conference says I will be appointed to St. Stephen's UMC in Burke as "Associate Pastor for Internet Ministries." How's that for the "world is my parish?" Guess I have some remaining potential after all.
And the VA says I should hear from them any day now. Really. (veterans can "feel" the mild smirk at this point)
Looks like I am still relying on grace.
Grace & Peace!


